20/40 Focus Group - ASPOA

This corner is devoted to stories of Young Adult Ostomates who made initiatives and made a difference in helping fellow ostomates adjust and serve others. This is their spotlight!

Hajime Hino, JOA 20/40 focus group leader

JOA 20/40 focus group celebrated its 4th year anniversary last June 2012 At present, the group has 86 members now. The group leader is Mr. Hajime Hino. They conducted a meeting for young ostomates in Fukuoka in January this year. This was followed with the 20/40 focus meeting during the JOA annual conference of Niigata last June. By holding an exchange meeting, although it is little-by-little, the link of young ostomates in Japan is being developed.

Mr. Hino san shares "I think that it is a result of the publicity work from our blog or from every direction. We get a subsidy and is creating a booklet for young ostomates. In the booklet, experiences, from a childhood such as entering school, employment, and love, are discussed and introduced. We hope to complete this by October.

We are planning an event in October. We will let you know soon.

Blood, poop and tears ... and rising above it.

I say this with the utmost respect. The fact that you put yourself out there and talk about a lot of taboo issues with humour and intelligence is wonderful and inspiring. I personally believe that part of healing is not being mentally consumed by a condition. Clearly you are taking control OVER the disease as much as you can but still, I have to wonder if you can move post ibd, cancer and other significant cases. MANY people have their own issues too. I have several very close family members who have been near death and clawed their way back. I would do my best to think of myself as healthy and well and not diseased and uncured. (Anonymous)