By Ns. Pipit Lestari, S.Kep
Sunday 21st June, the Stoma Nurse Ostomy Support Group (SOS) held an online meeting between stoma
nurses and ostomates in Indonesia, which was attended by representatives of the Asia Pacific Ostomy
Association (ASPOA) to match ideas about stoma in Indonesia. This meeting identified several stoma
challenges in Indonesia which has been exist for decades. Thousands of ostomates in Indonesia currently
face various challenges. Lack of knowledge about stoma care, poor coordination between ostomate
communities and the between the related health professionals, and affordable stoma bag supplies were
some of the problems that are highlighted. This problem became a serious concern because it is directly
related to ostomate quality of life.
There are currently huge number of ostomates in Indonesia, including old and new ostomates. Particularly
in Bogor Area, there are at least more than 35 new ostomates recorded every month. However, despite
this number of ostomate in Indonesia seemly to be huge, there is no exact data of ostomate recorded. We
assume that the number recorded may be far less than the real number. This amount cannot be recorded
properly due to lack of coordination between ostomate associations in Indonesia, as well as poor
coordination between related parties such as stoma nurses, ostomate associations, surgeons, government
and hospitals. The absence of a well-structured system that allows the regulation flow that supports the
ostomate from pre-operative to rehabilitative is major cause of this circumstance.
Another Issue is the majority of new ostomates do not get good education about stoma care, ostomy
supply (stoma pouches), and support groups. This issue are very significant because these uneducated
ostomate would likely to be clueless how to live with stoma. Furthermore they would find difficulties to
reach help and proper ostomy appliances. If this continues, there will be more ostomates whose quality of
life is at stake to be poor. Ostomate which has optimal support from stoma nurses, doctors, and fellow
ostomates has a much better quality of life than those who do not.
Stoma pouches are one of the primary needs for ostomates. Every month the ostomate needs at least 8 of
it. The price of each brands of stoma pouches ranges from IDR 30k to 35k per bag for colostomy bags
and IDR 50k-75k for urostomy bags. This price is certainly quite burdensome for ostomates, especially
for middle to lower economic ostomates. Not to mention the stoma accessories, which can cost hundreds
of thousands Rupiahs for ostomate with special needs such as hernia, and peristomal skin problem.
Without the proper stoma pouches and knowledge of stoma care, the quality of life of ostomate is likely
to be lower.
Nowadays, Stoma appliances assistance from ASPOA is always available. However, this donations and
assistance could not be delivered due to constraints related to Indonesian ostomate data and the
organizations that oversee the ostomate association are currently not well organized into one door system,
because it will cause lack of liability to assure this donations to be properly stored and delivered. of this
donationn. Other obstacles in receiving aid from abroad are shipping and taxing. Some assistance that has
been sent by ASPOA is still not delivered to ostomate because it stuck in Customs and bureaucracy to
collect the bags from Custom are difficult.
The main solution of this problem is to increase the collaborations between the parties concerned.
WOcare and SOS Indonesia are willing to re-facilitate this joint work, so that support for ostomate can
run optimally. Re-build a structured system to support the ostomate from the pre-operative process to
rehabiliative until the ostomate is able to return to live its life as before is necessary. Back to work
together to facilitate the supply of affordable bags for ostomate is very essential step to do. In the short
term step We could raise awareness for the community and all related parties including surgeons, nurses,
and government about stoma and the importance of meeting a stoma nurse so that more ostomates will
understand the proper stoma care and access to supply. In addition, the collaboration between all the
parties including ostomate associations, health facilities, surgeons, stoma nurses, governemnment and
community need to be facilitate soon. All the parties should Work together because Ostomate Quality of